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Support research for my nephew's rare disorder!

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Your donation helped fund study of titinopathy!

Katja Hebestreit
Katja Hebestreit wrote on 04-04-2024

Three years ago you graciously donated money to my fundraiser to support research for my nephew's rare muscle disorder. I am pleased to announce that those contributions were used to fund the research project entitled “Improving clinical trial readiness for TTN gene related centronuclear myopathies”. You can learn more about this study on the website of ZNM - Zusammen stark e.V. (German) and on the website of Team Titin (English). 

I am so grateful for your contributions. You are all amazing!
Katja