Dravet-Syndrom e.V.

About us

🟣 Who we are
Dravet-Syndrom e.V. is the national support organization for families affected by one of the most severe forms of epilepsy: Dravet Syndrome. This rare, genetic condition typically begins within the first year of life – and changes everything.

Many children with Dravet Syndrome experience significant intellectual and physical impairments. To this day, the condition remains incurable, difficult to treat – and still far too unknown.

🟣 What we do
We advocate – for awareness, education, support, and research.
We provide guidance, connect families, facilitate exchange, and offer advice on therapies, care, and everyday challenges. We campaign for increased research efforts and better treatment options.

🟣 How do we make it happen?
Only with your help! Our work is funded through membership fees – but above all through donations.

Every donation helps improve the quality of life for affected families.

Thank you for your support.